May 16, 2015
Jimmo and Buffy Grande of Fairfax Station listen to fun folksy music after the third annual Fragile X Walk. Jimmo was diagnosed with Fragile X syndrome at eight months old. Buffy was one of the co-organizers of the event to raise money for research and awareness of Fragile X.
Stories this photo appears in:
Fairfax Station: Fourth Fragile X Walk Scheduled for April 24
Since their first fundraising walk, the Northern Virginia Fragile X Family group has raised more than $130,000 for research into Fragile X, an inherited genetic mutation that can cause mental impairment ranging from moderate to severe learning disabilities and linked to Autism Spectrum Disorder.
Fragile X Walk at Burke Lake Draws Over 200
Like many parents and children, one of Burke Centre resident Monica Peña’s biggest challenges with her son Nicolas is communication. Unlike most children, “Nico” was diagnosed with Fragile X Syndrome at birth.
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